This author has not written his bio yet.
But we are proud to say that Carrie Tuttle contributed 30 entries already.
These words are being written from the new patient tower of Duke Children’s Hospital (which is amazing and huge.) They are also written by a mama with some tears of relief, gratitude, and joy in her eyes. Heath’s surgery went as well as possible. His ostomy “take down” is complete and they took the port […]
The Valvano Day Hospital is quiet this Christmas Eve morning. Actually, the halls of Duke are pretty quiet all over, not even much of a line at the Starbucks. That doesn’t change things for those families who are in all the rooms in the tower, of course, or the ED. Or for us getting Heath’s every-other-day […]
Today was a weird day. A day with so many feelings. You see, 13 years ago in the very early hours of December 14, Heath received the gift of life. He had been on ECMO for 10 days waiting for a heart. We were exhausted and scared and shell-shocked and hopeful, all at the same […]
With many questions from folks, we realized that it might be helpful to give you all another update and to lay out the plan (HOPEFULLY) for the next month or so. Heath had his final lumbar puncture on Tuesday afternoon. It was an incredibly long day, but it went pretty well and he didn’t get […]
We knew that this Thanksgiving would be a little different. Somehow I find myself sitting in my den for a little while, with only Rosie by my side, sipping tea by the fire. Chris is hanging with Heath at the hospital. Pat and Bob and EB are on the way back to Black Mountain, where […]
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