Entries by Carrie Tuttle

Wednesday, December 1 – What’s next?

With many questions from folks, we realized that it might be helpful to give you all another update and to lay out the plan (HOPEFULLY) for the next month or so. Heath had his final lumbar puncture on Tuesday afternoon. It was an incredibly long day, but it went pretty well and he didn’t get […]

Thursday, November 25 – Thanksgiving

We knew that this Thanksgiving would be a little different.  Somehow I find myself sitting in my den for a little while, with only Rosie by my side, sipping tea by the fire. Chris is hanging with Heath at the hospital.  Pat and Bob and EB are on the way back to Black Mountain, where […]

Sunday, October 31 – Balancing Tricks and Treats

It occurred to me earlier today, after multiple people asked if we were home, that I had not updated last night.  Heath got home from the hospital around 5pm Saturday–we had to make a deal that we’d come back first thing this morning for labs, but we were home!   A little Chinese take-out, a fire, […]

Friday, October 22 – Rosie is one today!

Chris and I were taking Rosie (the puppy) for a walk this morning, talking about how we knew we should not expect her behavior to miraculously improve on this milestone birthday.  But we can always hope…(see, there is my theme of hope again.)  And then, right in between us on the ground…SPLAT. Bird poop.  We […]