Entries by Carrie Tuttle

Wednesday, September 29 – We can do hard things

Over the years, as folks have learned about Heath’s heart transplant story, we have often seen them shake their head, maybe even tear up a little bit and say something like, “I don’t know how you’ve done this, how he has done this.” Or “How are you still standing?” Or “You are so strong.  I don’t think […]

Friday, September 24 – Throwback Thursday

“Throwback Thursday” hit us in a pretty unfortunate way yesterday, in the form of Rapid Response and our old “friend” PICU Room 1. Overnight Wednesday into Thursday, Heath had become increasingly uncomfortable in his belly, which was getting bigger. By the time I arrived Thursday morning, the first NG (nose) tube had been placed to […]

Wednesday, September 22 – Weary Wednesday

Timely updates are tough because things keep changing, hour by hour, sometimes even minute by minute (which is making me chuckle a little because anyone who has spent a lot of time in any hospital knows that it is almost always a “hurry up and wait” kind of place). Nevertheless, I know folks are anxious […]

Saturday, September 11 — Remembering

Heath and I are sitting here in his hospital room watching the coverage of the 20th anniversary of 9/11.  I am glad I am sitting a little behind him because I keep feeling the tears on my face as I think back to that day, as I think of the lives lost, the acts of […]

Wednesday, September 8 — A busy week and next steps

On Tuesday we had walked from the PET scan in the Duke Cancer Center back to the 4th floor of the CHC (Children’s Health Center) with the PET IV still in, hoping that they could use his IV to draw labs.  As we were telling the story of our “journey” to the nurse drawing labs […]