We are HOME!
Until 4pm we were still up in the air—waiting on some labs and an iv, for the teams to confer about med changes—and then Suzi (our primary nurse) came in and said, “the orders are going in and meds are down at the pharmacy. Let’s get this boy home!” His white cells and ANC started going up this weekend, a little sooner than expected with all the stress of surgery, so the team decided that it would be great to get Heath home for more rest and recovery. We have to come in for labs Tuesday and Thursday, but that is an ok price to pay.
It’s amazing how much stuff you accumulate with a 2-week hospital stay. As we waited for Chris and Wilson to come around with the car, we realized Heath hadn’t been outside since Sept. 20.
We were welcomed home by Ama standing in the yard with the Wassers—Heath’s amazing 3rd grade teacher and her husband and baby, who had just brought dinner (❤️ ).
He is super weak and has lost a ton of weight in the last few months—and being bedridden post-surgery robs you of muscle mass—but he made it into his “Heath cave” recliner with a huge smile. His little brother stayed with him pretty much all evening—so glad he was home and talking football. EB helped keep Rosie away because she was SO EXCITED to see her boy that she tried to join him in the recliner…
We are so glad to be home, but if I am being totally honest, we are exhausted and pretty darn overwhelmed with med changes and new medical responsibilities with ostomy and health monitoring. I find myself thinking constantly about all the folks in our lives who have been caregivers for loved ones.
We’ll check back in at chez Duke next Tuesday to start the next cycle of chemo. This is hard, but we have to make sure that obliteration takes place—so we’ll keep on going.