Heath loves team sports: baseball, basketball, football, you name it. The Tuttle family cherishes the support of a large team of family and friends in the good, fun times and in the hard times.
This site is to keep the beloved members of this team informed about the latest with our favorite all-star.
Dear friends and family and wonderful community–
Many of you have been aware that Heath has been hospitalized the past few weeks. After a battery of tests, yesterday pathology reports returned with a diagnosis of PTLD (Post-Transplant Lymphomoproliferative Disease), which is a form of lymphoma that often occurs in people who have suppressed immune systems. When you have an organ transplant like Heath did when he received the gift of a heart transplant almost 13 years ago, you take immuno-suppression medications to keep your body from rejecting that heart. But when your immune system doesn’t function properly, occasionally other things can grow.
We are stunned, exhausted, overwhelmed, terrified, and hopeful, often at the same time. We are in the process of making his treatment plan, which will likely involve between 18 and 20 weeks of chemotherapy. While he is hospitalized now, we are deeply hopeful that most of it will be outpatient.
We have the utmost confidence in our world-class team at Duke. Heath has been a resident of the hematology/oncology unit for the last week, and we have already built strong relationships with the medical team–goodness knows it takes a special human to spend their life’s work on pediatric oncology. Our amazing cardiology team is following Heath closely. His heart is strong. We have been told by many sources that this is “very treatable, although it might be a tough road for some time.” Heath is strong and self-aware and is gearing up for this fight. The thought that he would have to go through more than he’s already gone through in his young life is almost too much to bear, but he in fact does bear it with grace and humor. And we will bear it with him. He really is grateful for regular communication with folks via texts and laughs at silly TikToks. We’ve been watching lots of baseball and HGTV, prepping for fantasy football, and figuring out how to set up his xbox in his room…all the things.
Chris and I are working with both of our wonderful congregations to take some time away to focus on Heath’s treatment and our family. Ella Brooks and Wilson also need to live their lives and function in the world, even in the midst of these hard things. Please know that when you see us out in the world with them, we might not go into much detail about how Heath is doing, as we are trying to figure out how to keep things “normal” for them as well.
We will keep you updated here on this website as we move along. (Thank you to our dear friend, Shelley Bainter, for being willing to help us navigate sharing information!)
Please know that we may not be able to respond to all your beautiful acts, texts, emails, calls of care and love, but we FEEL your love and your prayers.
Carrie and Chris
(this amended from letters that have/will been sent to both our congregations)
We know that you all are wondering what you can do to help. Visit this page to see what might help us at this time.
Heath doesn’t want me to take a pic of him right now, so he let me share this fun Nationals treat that just arrived with the cousins from Virginia and the awesome Blue Devil painting by one of his good buddies…(note—he is not eating the candy quite yet ). We don’t have much new information, still waiting on lots of answers, but we’ve had so many folks asking that I thought I would let you know how he’s doing. He has had a few rest/recovery days. Heath is much more his “usual self” today, and we’re settling in to watch MLB play on the Field of Dreams this evening. He even has tentatively enjoyed a little of his fav Panera and Noodles & Co.
Obviously we would love to be elsewhere eating our favs and watching mlb, but today we’re finding joy in being able to do it in general. We probably won’t post again until we have more concrete info. For now, please know that your love and support and offers for help and meals are fervent reminders of the gift of community, that none of us are alone in the hard places (or the softer ones) in life.
[copied from Carrie’s Facebook]